September 18, 2018

Abby was diagnosed with Stage 4 Alveolar Rhabdomyosarcoma a week before her 16th birthday.  Prior to her diagnosis Abby was slightly reserved and many people were concerned at how she would handle the grueling treatment schedule that comes with Stage 4 Rhabdo.  Abby’s...

January 17, 2018

Jack lost his brave fight to Rhabdomyosarcoma in July 2016 at the age of 20 years old. The following are  his own words…… 

My name is Jack. I’m 19 years old. I became ill last year whilst taking my A levels. After initial problems with the diagnosis, I was confirme...

December 2, 2017

​sophi loves to be outside, ​

​there was never a moment that she wanted to be inside. She loved ballet, roller-skating and played softball. She would often come inside and immediately beg to go right back out. Nothing could keep 


September 2, 2017

2/27/96 - 3/12/13

Austin always said he was NOT normal. Austin was a fighter from the very took me 7 months to get pregnant with him with one very difficult prior miscarriage.  Still, HE was the baby I was supposed to have and raise.

Though difficult from...

September 2, 2017

September 2017, launches the first of what will be the many faces of Rhabdo featured on our website. These faces tell the story of incredible young kids, their battles and their spirit. This month we feature our first face of Rhabdo.

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The Many Faces of Rhabdo